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Tom Coughlin is best known as the head coach of the New York Giants, whose discipline and attention to detail led the team to two Super Bowl victories. Coughlin writes today for Times Opinion about a very different challenge — caring for his ailing wife, Judy, who has progressive supranuclear palsy, a brain disorder with no known cure.
P.S.P. is rare — when I tried to find out how many Americans die from it each year, I couldn’t track the number down. In 2019, however, it included my father-in-law, Walid Hindo. Dr. Hindo, who was born in Baghdad, moved his young family in the 1960s to the United States, where he became a well-regarded radiologist and an active member of his Syriac Catholic church.
If you’ve ever cared for a seriously ill or grieving loved one, you’ll understand how illness and death remake the world. P.S.P. is a disease that, as Coughlin details, steals your loved one from you, even before death. In his final years, Dr. Hindo’s large extended family and church community pitched in to care for him — as well as numerous physicians, home health aides, specialists, therapists, nurses and social workers — but the majority of the work of coordinating his care still fell to his daughters and wife.
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